Parents’ Columns – September 2023

Andrew Michael Levinson 9/16/87 – 9/17/15 For Our Andrew – Life was never as expected. We couldn’t have imagined Muscular Dystrophy would be part of our son’s life, but at the start, there it was. And yet, the limitations of his diagnosis would not...

Parent Column – July 2023

Maybe with a few words I could make sense of what happened fifteen years ago Maybe in a three hundred page book I could make sense of what happened fifteen years ago.   Maybe a small pond would hold the tears I have shed Maybe the ocean wouldn’t be big enough....

Parent Column – May 2023

Joshua Quinn Faithfull On March 26, 2017, our beloved, Joshua Quinn Faithfull had his life tragically cut short. Josh always lived life as if each day was his last. At 16 years old, he received a late diagnosis of a very rare & incurable central nervous system...

Parent Column – April 2023

From Chuck & Gail Lacks Kenneth Michael Lacks 4/29/1964 – 9/18/1995 Wish you were here today, even for just a little while so I could say happy birthday and see youbeautiful smile. The only gifts today will be the gifts you left behind, the laughter, joy, and...

Parent Column – March 2023

Joshua Quinn Faithfull On March 26, 2017, Joshua Quinn Faithfull, my soul mate & beloved son had his life tragically cut short from a malignant transformation of his congenital Neurocutaneous Melanosis (NCM). Joshua’s entire life was fraught with painful...